LIVING WITH CHRONIC PAIN

January 8, 2017 7:30 am

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  1. Georgina

    January 8th, 2017 at 12:58 pm

    My husband also has constant pain, but his is from two herniated discs in his lumbar spine, exacerbated by scoliosis. He also broke his dominant wrist really badly last year, and adding that to the mix, is in a lot of pain every day. I think the biggest thing that people don’t realise is just how tiring it is to be in pain all the time – it really does drain you. So I feel for you and what you’re going through. There are loads of joint remedies out there – have you tried any? Also keeping moving as much as possible really helps to prevent stiffening up, but I know you know that!

  2. Break The Loop

    January 11th, 2017 at 9:44 am

    Arghh herniated discs!? I can only imagine how painful that is! I always think back pain is especially bad / draining as well? My mum suffers from something similar but higher up the spine and some days she can barely walk. Joint remedies are a good shout, thanks for the heads up! I hope your husband finds some relief from it all!

  3. Alicia

    January 8th, 2017 at 1:05 pm

    I hear yah on the pain front. I’ve had chronic pain in my neck and shoulder for 5 years now! No one knows why it’s there, it’s never really gone away but when it’s not bad I just get on with life with low grade pain. At present it has been a vengeful git for the last 2+months. Seeing chiropractor and upped my vital D content, its a costly process which doesnt give lasting effects. Sleep? What’s that?! Not had any proper sleep in awhile has the pain wakes me up.
    I have found neck stretches and cold packs helpful, but, like you’ve mentioned it doesn’t last. I’ll keep an eye on you your updates incase you happen upon the holy grail. Good luck dude…

  4. Lorraine

    January 8th, 2017 at 5:45 pm

    I feel for you. Back in middle of 2014 I began to suffer with hip, shoulder, neck and thigh pain. At this time I lost both my Dad and my aunt within 10 days of each other. I had entered a half iron distance race in August and was determined to race it. I continued to train, but I got slower and stiffer. I would wake at night unable to move. I had to pull myself over with my arms to turn over. I did my race ( a got a friend to do the cycle part) but did the swim and run. Every step felt like I was running on stumps. After that I rested for 2 weeks, but got even worse. Off to the doctor. Blood tests – take anti inflammatory tablets 3 times a day. Blood showed nothing- was referred to a pain specialist ( rheumatoid doctor) he did more bloods and referred for scans of stiff joints. The diagnosis was =polymyalgia+rheumatica. Treatment is an ongoing taking of steroids- starting at 10mgs and decreasing over time. Now 2 years on I am still decreasing, not fully back to normal. Though it all I have continued to swim, bike,run. My consultant has always encouraged me to keep going. And I always will. Sorry for such a long story. I know how frustrating not having an answer is. You may have already been tested for this. I hope you have an answer soon.

  5. Break The Loop

    January 11th, 2017 at 9:41 am

    Hi Lorraine, that sounds awful! And taking steroids for so long is also not fun! I was on them for years when I was younger… Are you feeling much better now or still the same? Well done for powering through with everything, it’s hard enough when you’re feeling in tip top shape! P.S Apologies for sending you our email TWICE! Tech fail, somehow you sneaked onto the second list! Doh!

  6. Colette

    January 8th, 2017 at 10:09 pm

    Hi Dan – we’ve chatted before but here’s a few thoughts (sorry if you’ve already covered this stuff):
    I have read that although GPs have been told to check for Vit D levels in patients, they are not yet up to speed on the morbidity of the conditions resulting from deficiency and according to a Prof Michael Holick (a Vit D specialist, I think he’s american) bone softening or osteomalacia may occur. His advice is that osteomalacia takes years to develop and can take a year or more to resolve, although people may begin to feel better after three months or so.

    Aside from that, I expect you’ve been ruled out for anything autoimmune (such as PMR) and / or had inflammatory marker blood tests (CRP, ESR, etc). Also, my experience with low ferritin / iron illustrated how the standard NHS blood test limits are not a one size fits all, especially fit people – which can apply to other blood measures too. So it may be worth getting some more specific tests from a private specialist (like CuroSeven).

    Healing, Hygge thoughts x

  7. Natasha

    January 13th, 2017 at 8:35 pm

    I mentioned this to Hayley, I suffer wth chronic pain too, but I’m ‘lucky’ in the sense that it’s largely due to me having quite severe joint hypermobility syndrome..by lucky I mean that I have a diagnosis, and although not curable, it’s manageable. I was also diagnosed with Vitamin D deficiency 2 years ago, and bone demineralisation (very early stages of osteoporosis).
    I hope doctors can get to the bottom of whats going on. Good luck!
    Natasha | http://www.danceflowlift.com

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